It’s not you. It’s me

It’s not you. It’s me

Sunday night was a milestone. I broke up with Gil. Gilenya. Gilenya was my DMD (Disease Modifying Drug) of choice to combat my MS. Every night at about 10pm we’d have our little love / hate ritual. Love, because while I’ve been taking it I’ve not had an MS episode or...

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When Chemo Caps Go Bad

When Chemo Caps Go Bad

105 days and counting… So much to do and so little time. I’m trying to be organised, and have things ready so I don’t have an anxiety / panic attack on November 19, the day before I depart. Although the hospital in Moscow is a fully functioning hospital there’s a few...

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Christmas in July

Christmas in July

In preparation for my health evaluation in Moscow in November, I’ve resumed Pilates classes after a two year sabbatical and I started on the Wesley LifeShape Program to lose a few kilos. It’s not that I particularly want to do either of these things but I figure the...

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One step forward, 2 steps back…

One step forward, 2 steps back…

I, along with other HSCT candidates received news from Moscow overnight. It might be good for some, it might be considered bad for others, I’m just optimistic that it’s all OK and that it’s just a new step to add to the MS cha-cha. To all our patients;...

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What’s the “IT” word of the moment?

What’s the “IT” word of the moment?

Journey. Journey now seems to be the *it* word of the moment, much to the credit of reality television and the bloggersphere. Food JourneyMusic JourneyTalent JourneyTravel JourneyDating JourneyFitness JourneyWeight Loss JourneyRenovation Journey Everyone’s on a...

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HSCT and Me

HSCT and Me

I see an advertisement on TV for 60 Minutes. The story promotes a wife and Mum from the Gold Coast who travels to freaking Moscow to halt MS. They say MS is a death sentence. I tweet and FB my disgust at the sensationalist nature of the promo. So  I...

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It’s My Party

It’s My Party

It’s a week before my 40th birthday. I’m running errands at work and I feel like I’m walking like a 90 year old. I normally put on my big girl knickers and suck it up, think no one will notice and consider it a bad day. A client notices me struggling and asks if I’m...

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